Because We Are Strong

INTERVIEW: Mariah Gillaspie

October 06, 2020 Theresa Thomas & Kristine Hoestermann // Guest: Mariah Season 1 Episode 7
Because We Are Strong
INTERVIEW: Mariah Gillaspie
Chapters
Because We Are Strong
INTERVIEW: Mariah Gillaspie
Oct 06, 2020 Season 1 Episode 7
Theresa Thomas & Kristine Hoestermann // Guest: Mariah

We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and Love Foundation to raise awareness, advance scientific research, a find a cure for diseases caused from a mutation in the THAP12 gene.


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Support THAP12 >> https://findyourrare.com/collections/rare-aware-apparel/products/copy-of-greater-than-chronic-pain-t-shirt

Connect with Mariah and Lighting & Love Foundation


Foundation Website: www.lightningandlove.org

GoFundMe: gf.me/u/yqhc2k

Foundation Instagram: https://www.instagram.com/lightningandlove/

Foundation Facebook:https://www.facebook.com/lightningandlove

Introduction Video: https://www.youtube.com/watch?v=5WyVp2dTR9c


 Think of the people who are sharing their health story on social media or a blog, leading a Facebook group, hosting a podcast, working with nonprofits, collaborating with healthcare, and more!
Head to wegohealth.com/backslash awards to learn more and nominate today!

 That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. 

Support the show (https://www.patron.com/findyourrare)

Show Notes

We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and Love Foundation to raise awareness, advance scientific research, a find a cure for diseases caused from a mutation in the THAP12 gene.


_________________________

Support THAP12 >> https://findyourrare.com/collections/rare-aware-apparel/products/copy-of-greater-than-chronic-pain-t-shirt

Connect with Mariah and Lighting & Love Foundation


Foundation Website: www.lightningandlove.org

GoFundMe: gf.me/u/yqhc2k

Foundation Instagram: https://www.instagram.com/lightningandlove/

Foundation Facebook:https://www.facebook.com/lightningandlove

Introduction Video: https://www.youtube.com/watch?v=5WyVp2dTR9c


 Think of the people who are sharing their health story on social media or a blog, leading a Facebook group, hosting a podcast, working with nonprofits, collaborating with healthcare, and more!
Head to wegohealth.com/backslash awards to learn more and nominate today!

 That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. 

Support the show (https://www.patron.com/findyourrare)