We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and Love Foundation to raise awareness, advance scientific research, a find a cure for diseases caused from a mutation in the THAP12 gene.
Support THAP12 >> https://findyourrare.com/collections/rare-aware-apparel/products/copy-of-greater-than-chronic-pain-t-shirt
Connect with Mariah and Lighting & Love Foundation
Foundation Website: www.lightningandlove.org
Foundation Instagram: https://www.instagram.com/lightningandlove/
Introduction Video: https://www.youtube.com/watch?v=5WyVp2dTR9c
That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness.Support the show (https://www.patron.com/findyourrare)