Because We Are Strong

INTERVIEW: Mariah Gillaspie

October 06, 2020 Theresa Thomas & Kristine Hoestermann // Guest: Mariah Season 1 Episode 7
Because We Are Strong
INTERVIEW: Mariah Gillaspie
Chapters
Because We Are Strong
INTERVIEW: Mariah Gillaspie
Oct 06, 2020 Season 1 Episode 7
Theresa Thomas & Kristine Hoestermann // Guest: Mariah

We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and Love Foundation to raise awareness, advance scientific research, a find a cure for diseases caused from a mutation in the THAP12 gene.


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Support THAP12 >> https://findyourrare.com/collections/rare-aware-apparel/products/copy-of-greater-than-chronic-pain-t-shirt

Connect with Mariah and Lighting & Love Foundation


Foundation Website: www.lightningandlove.org

GoFundMe: gf.me/u/yqhc2k

Foundation Instagram: https://www.instagram.com/lightningandlove/

Foundation Facebook:https://www.facebook.com/lightningandlove

Introduction Video: https://www.youtube.com/watch?v=5WyVp2dTR9c


Support the show (https://www.patron.com/findyourrare)

Show Notes

We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and Love Foundation to raise awareness, advance scientific research, a find a cure for diseases caused from a mutation in the THAP12 gene.


_________________________

Support THAP12 >> https://findyourrare.com/collections/rare-aware-apparel/products/copy-of-greater-than-chronic-pain-t-shirt

Connect with Mariah and Lighting & Love Foundation


Foundation Website: www.lightningandlove.org

GoFundMe: gf.me/u/yqhc2k

Foundation Instagram: https://www.instagram.com/lightningandlove/

Foundation Facebook:https://www.facebook.com/lightningandlove

Introduction Video: https://www.youtube.com/watch?v=5WyVp2dTR9c


Support the show (https://www.patron.com/findyourrare)