Because We Are Strong

INTERVIEW: Nikki McIntosh & Rare Mamas

February 23, 2021 Theresa Thomas & Kristine Hoestermann / Guest: Nikki Season 2 Episode 38
Because We Are Strong
INTERVIEW: Nikki McIntosh & Rare Mamas
Chapters
Because We Are Strong
INTERVIEW: Nikki McIntosh & Rare Mamas
Feb 23, 2021 Season 2 Episode 38
Theresa Thomas & Kristine Hoestermann / Guest: Nikki

Nikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding.

Nikki, her son Miles, and the McIntosh family have been interviewed and featured in various newspapers and magazines, and their rare-disease journey has been highlighted in several documentary films.

Nikki has represented the rare-disease parent voice to various biotech companies. Through interviews, podcasts, speaking, and writing, she sheds light on the challenges parents face while raising children with a rare disease. 

Nikki is the founder and creator of Rare Mamas, a resource and community to support rare disease mothers.

____________________________

Connect with Nikki:


E-Mail: [email protected]
@rare_mamas
Rare Mamas

For speaking, press, or partnerships contact: [email protected]


 Think of the people who are sharing their health story on social media or a blog, leading a Facebook group, hosting a podcast, working with nonprofits, collaborating with healthcare, and more!
Head to wegohealth.com/backslash awards to learn more and nominate today!

 That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. 

Support the show (https://www.patron.com/findyourrare)

Show Notes

Nikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding.

Nikki, her son Miles, and the McIntosh family have been interviewed and featured in various newspapers and magazines, and their rare-disease journey has been highlighted in several documentary films.

Nikki has represented the rare-disease parent voice to various biotech companies. Through interviews, podcasts, speaking, and writing, she sheds light on the challenges parents face while raising children with a rare disease. 

Nikki is the founder and creator of Rare Mamas, a resource and community to support rare disease mothers.

____________________________

Connect with Nikki:


E-Mail: [email protected]
@rare_mamas
Rare Mamas

For speaking, press, or partnerships contact: [email protected]


 Think of the people who are sharing their health story on social media or a blog, leading a Facebook group, hosting a podcast, working with nonprofits, collaborating with healthcare, and more!
Head to wegohealth.com/backslash awards to learn more and nominate today!

 That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. 

Support the show (https://www.patron.com/findyourrare)