Because We Are Strong

INTERVIEW: Nikki McIntosh & Rare Mamas

February 23, 2021 Theresa Thomas & Kristine Hoestermann / Guest: Nikki Season 2 Episode 38
Because We Are Strong
INTERVIEW: Nikki McIntosh & Rare Mamas
Show Notes

Nikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding.

Nikki, her son Miles, and the McIntosh family have been interviewed and featured in various newspapers and magazines, and their rare-disease journey has been highlighted in several documentary films.

Nikki has represented the rare-disease parent voice to various biotech companies. Through interviews, podcasts, speaking, and writing, she sheds light on the challenges parents face while raising children with a rare disease. 

Nikki is the founder and creator of Rare Mamas, a resource and community to support rare disease mothers.

____________________________

Connect with Nikki:


E-Mail: nikki@raremamas.com
@rare_mamas
Rare Mamas

For speaking, press, or partnerships contact: media@raremamas.com


The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

Support the show