Because We Are Strong

INTERVIEW: Nikki McIntosh & Rare Mamas

February 23, 2021 Theresa Thomas & Kristine Hoestermann / Guest: Nikki Season 2 Episode 38
Because We Are Strong
INTERVIEW: Nikki McIntosh & Rare Mamas
Chapters
Because We Are Strong
INTERVIEW: Nikki McIntosh & Rare Mamas
Feb 23, 2021 Season 2 Episode 38
Theresa Thomas & Kristine Hoestermann / Guest: Nikki

Nikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding.

Nikki, her son Miles, and the McIntosh family have been interviewed and featured in various newspapers and magazines, and their rare-disease journey has been highlighted in several documentary films.

Nikki has represented the rare-disease parent voice to various biotech companies. Through interviews, podcasts, speaking, and writing, she sheds light on the challenges parents face while raising children with a rare disease. 

Nikki is the founder and creator of Rare Mamas, a resource and community to support rare disease mothers.

____________________________

Connect with Nikki:


E-Mail: [email protected]
@rare_mamas
Rare Mamas

For speaking, press, or partnerships contact: [email protected]


RARE.
WE ARE A BRAND WITH A PURPOSE.

Behind every RARE. product is a mission to spread awareness around rare diseases and advocate for those struggling silently with them everyday. We want to make the invisible – visible. And that’s why we created RARE. To Learn More head over to www.findyourrare.com

Support the show (https://www.patron.com/findyourrare)

Show Notes

Nikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding.

Nikki, her son Miles, and the McIntosh family have been interviewed and featured in various newspapers and magazines, and their rare-disease journey has been highlighted in several documentary films.

Nikki has represented the rare-disease parent voice to various biotech companies. Through interviews, podcasts, speaking, and writing, she sheds light on the challenges parents face while raising children with a rare disease. 

Nikki is the founder and creator of Rare Mamas, a resource and community to support rare disease mothers.

____________________________

Connect with Nikki:


E-Mail: [email protected]
@rare_mamas
Rare Mamas

For speaking, press, or partnerships contact: [email protected]


RARE.
WE ARE A BRAND WITH A PURPOSE.

Behind every RARE. product is a mission to spread awareness around rare diseases and advocate for those struggling silently with them everyday. We want to make the invisible – visible. And that’s why we created RARE. To Learn More head over to www.findyourrare.com

Support the show (https://www.patron.com/findyourrare)