Because We Are Strong

INTERVIEW: Terri Gortner & Batten Disease

March 30, 2021 Kristine Hoestermann / Guest: Terri Gortner Season 2 Episode 45
Because We Are Strong
INTERVIEW: Terri Gortner & Batten Disease
Chapters
Because We Are Strong
INTERVIEW: Terri Gortner & Batten Disease
Mar 30, 2021 Season 2 Episode 45
Kristine Hoestermann / Guest: Terri Gortner

Hey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4.

Connect with Terri @cureforclaire

Cureforclaire.com


RARE.
WE ARE A BRAND WITH A PURPOSE.

Behind every RARE. product is a mission to spread awareness around rare diseases and advocate for those struggling silently with them everyday. We want to make the invisible – visible. And that’s why we created RARE. To Learn More head over to www.findyourrare.com

Support the show (https://www.patron.com/findyourrare)

Show Notes

Hey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4.

Connect with Terri @cureforclaire

Cureforclaire.com


RARE.
WE ARE A BRAND WITH A PURPOSE.

Behind every RARE. product is a mission to spread awareness around rare diseases and advocate for those struggling silently with them everyday. We want to make the invisible – visible. And that’s why we created RARE. To Learn More head over to www.findyourrare.com

Support the show (https://www.patron.com/findyourrare)