INTERVIEW: Amanda Griffith Atkins and Prader-Willi Syndrome Artwork

Because We Are Strong

Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a lack of knowledge and understanding. Your story has the potential to touch and reach those who can relate and who otherwise feel alone. Together through our struggles, we can show our strength.

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Because We Are Strong

INTERVIEW: Amanda Griffith Atkins and Prader-Willi Syndrome

December 07, 2021 • Kristine Hoestermann / Guest: Amanda Griffith Atkins • Season 2 • Episode 82

Hey peeps, this week I am so excited to sit down and chat with Amanda, not only is she a member of this RARE. herd but she is also a therapist.

Meet Amanda:

I'm a mom to a 12-year old with Prader-Willi Syndrome as well as a licensed marriage and family therapist.

My son got his diagnosis when he was 7 weeks old. It turned my life upside down and I quickly learned that there wasn't much space for the "hard" feelings related to parenting a child with a disability. It's become a bit of a life mission to give parents space to talk about the hardship, while also recognizing that they love their child so much. Pain and love and exist at the same time!

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Connect with Amanda:
@amanda.griffith.atkins
www.amandaatkinschicago.com

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This episodes was sponsored by :

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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Kristine Hoestermann

Host